PERSONALIZED SUPPORT FOR PATIENTS AND FAMILIES
Support specialists help you manage the challenges of living with LEMS
Patients with Lambert-Eaton myasthenic syndrome (LEMS) and their families face a variety of challenges every day. That’s why Catalyst Pathways® features a dedicated team of support specialists who have the answers you’re looking for and are trained to troubleshoot any issues that may arise.
Complete the Enrollment Form with your doctor or call 1-833-4-CATALYST
(1-833-422-8259) for assistance.
Need help completing the form?
Watch this video for simple, step-by-step instructions for enrolling in the Catalyst Pathways program and hear from Martha, one of the Catalyst Pathways PALs, who talks about her role in the process.
Go to YourCatalystPathways.com for a full list of the support programs available, including financial assistance.
Talking to your doctor
Preparation is the key to having a productive conversation with your LEMS physician. You’ll want to start taking notes about how you’re feeling so that you can provide input to the doctor during your office visit. Your physician knows best when it comes to LEMS diagnosis and treatment, but when it comes to your symptoms, you are the expert! Your notes don’t need to be lengthy but should provide enough detail to give your doctor a clear picture of what’s going on.
Be sure to include:
- Specific information about your symptoms and how they affect your daily activities
- A timeline of your illness: when symptoms first appeared, how they progressed, and whether they’ve fluctuated, gotten better, or gotten worse
- Details about previous treatments you’ve received or used, including prescription drugs, over-the-counter remedies, and any physical therapy or rehab
- A list of any questions you have. It’s easy to forget your questions for the doctor when you’re in the exam room. Make a list and carry it with you into the exam—that way, you won’t forget to get the answers you’re looking for
Listen to Tom describe his personal experience with Catalyst Pathways
Share your story!
Do you have LEMS? Are you taking FIRDAPSE? Chances are, you’ve learned some things that might be helpful to someone newly diagnosed with LEMS.
Click on the email link below to share your experiences, thoughts, knowledge, and tips about your life with LEMS now.
Educational resources from FIRDAPSE
Take advantage of these resources available to patients with LEMS and their caregivers.
These regional education events, hosted by a Patient Access Liaison (PAL), provide patients with LEMS and their caregivers a casual and welcoming environment to learn about different topics relevant to their condition. Coffee Breaks are held live whenever possible or via a Zoom call when necessary. It’s also a great way to connect with other patients in an informal setting. Connect with a PAL to learn more.
Move Forward with FIRDAPSE
This educational brochure provides easy-to-understand information about the causes of LEMS, its key symptoms, and how it’s diagnosed. It also includes information about FIRDAPSE, such as dosing tips, clinical study highlights, and details about our Delivery Assurance Program. The brochure closes with Important Safety Information, but not before you get to meet Wade and Jerry—two LEMS patients who found their way forward with FIRDAPSE.
Could It Be LEMS?
This educational infographic illustrates the symptoms of LEMS as well as two forms of myasthenia gravis (MG)—disorders that are often mistaken for LEMS. The infographic shows how the disorders are similar but also points out key differences that may help you distinguish LEMS from MG.
My Health Journal
This treatment journal provides healthful lifestyle tips and journal pages where patients can easily track important information, such as their FIRDAPSE dosing schedule, other medications and supplements they are taking, and their response to treatment. Because LEMS symptoms can change or worsen over time, it’s important to keep an accurate record of your health status. Your doctor can use this information to make dose adjustments that can keep you at your best. To get a copy of the journal, call Catalyst Pathways at 1-833-422-8259 or talk to your Patient Access Liaison (PAL).
This mentoring program enables patients who have been diagnosed with LEMS to talk with other LEMS patients about their personal experiences with LEMS and/or FIRDAPSE. To get connected to a mentor, visit LEMSconnection.com or call 1-833-492-8853.
A Look at LEMS
This on-demand educational webinar allows patients to learn more about LEMS from a neuromuscular specialist, hear the personal journey of a woman living with LEMS, and find opportunities for support.